November 17, 2021
It's disconcerting to be short of breath during a global pandemic that can trigger respiratory infection. Granted, the shortness of breath isn't new, though it has been notably worse in the last year. At first I shrugged it off, evidence that I really ought to try again to establish an exercise practice.
But then friends started pointing out that it's not normal to get out of breath when doing ordinary household tasks. And then there was the day when two different people, on two different phone calls, said, "You sound really out of breath. Are you okay?" (Subtext: do you think you have COVID?)
I noted that I'm always out of breath, it's nothing to worry about. "On the contrary," they said. "If you're always short of breath, that makes me even more worried about it. Go see a doctor, please." I rolled my eyes, but I made an appointment to speak with a doctor about it. That was many months ago.
The first thing we tried was a course of steroids, which didn't do much. Next came a cardiac stress test. Predictably, jogging on a treadmill made me wheeze. Then there was a nuclear stress test that made me radioactive, which my kid thought was hilarious. (Alas, it didn't make me glow in the dark.)
Maybe the strangest experience was the hour that I spent sitting inside a small glass box, like Clark Kent crammed into a phone booth, breathing on command into a tube with a clamp over my nose. The technician was gowned, gloved, triply masked. Standard COVID precautionary protocol.
From that pulmonary function test we learned that the amount of air I can forcefully exhale in one second is around half of what it should be. There was a strange relief in learning that. It's so easy to minimize my breathlessness, or to blame it on being "out of shape," but that's not what this is.
I have learned a new phrase: "severe eosinophilic asthma." We're trying injections to improve my breathing. After my first shot, while I was waiting an hour in the doctor's office to make sure my throat didn't close up, I looked up the biologic agent. It turns out to be a form of monoclonal antibody.
I had never heard of monoclonal antibodies before the COVID-19 pandemic. Who among us had? Now, of course, we all know the term. It's fascinating to think about all of the medical terms and treatment methods, the pandemic-related language that has entered common public parlance in the last year.
During the pandemic it has sometimes felt like the whole world has been holding our breath, waiting for this to end. I realize now that that's the wrong frame. I miss the days when we thought the pandemic would end. (And of course I think of George Floyd and Eric Garner and "I can't breathe...")
For now, these days, I often have to sit down and catch my breath in the middle of simple household tasks. I am working on extending compassion toward myself as we try new medications and interventions to see whether and how my lungs will respond. This is the day that God has made...
Sometimes when I need to center and calm myself, there's a breathing meditation I practice. I learned it many years ago on retreat. It's a simple meditation, mapping the four letter Name of God to four moments: the empty-lungs moment before breath; inhale; lungs full of air; exhale.
י / Empty -- ה / inhale -- ו / full -- ה / exhale. And again. A letter of God's name for the pause before breathing, for the inbreath, for the pause with lungs full, for the outbreath. A reminder that God is always with me: in the moments when breathing comes easy, and in the breathless moments too.