How to be sick well: Toni Bernhard's guide for the chronically ill
November 10, 2014
This book is written for people who are ill and aren't going to get better, and also for their caregivers, people who love them and suffer along with them in wishing that things were different. It speaks most specifically about physical illness. In the largest sense, though, I feel that this book is for all of us. Sooner or later, we are all going to not "get better."
That's acclaimed Jewish-Buddhist teacher Sylvia Boorstein in her introduction to How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers by Toni Bernhard.
The book was recommended to me by one of my congregants who cares for a chronically ill loved one. She described Bernhard's book as "How to be sick well" -- how to achieve emotional and spiritual wellness even when one's body remains sick.
Bernhard became ill in 2001 and has suffered from chronic illness ever since. The first two chapters tell the story of her illness. Beginning in chapter three she shares how her Buddhist learning offered her a way of approaching her illness as a spiritual practice. She wanted to know "how to live a life of equanimity and joy despite my physical and energetic limitations." This book offers her answers to that question.
Early in that third chapter she writes about the power of "just being" with what is:
Just "being" life as it is for me has meant ending my professional career years before I expected to, being house-bound and even bed-bound much of the time, feeling continually sick in the body, and not being able to socialize very often. [Drawing on Buddhist teaching,] I was able to use these facts that make up my life as a starting point. I began to bow down to these facts, to accept them, to be them. And then from there, I looked around to see what life had to offer. And I found a lot.
I struggle a little bit with her language of "bowing down to" these facts. And yet I recognize that there is wisdom in accepting what is, instead of getting caught up in wishing that things were different. I know that in my own life I get into trouble when I get attached to my expectations of how something will be, and I feel more open to blessings when I can simply be with what is.
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